This undated photo shows Terry Horgan with his parents in the family's Montour Falls, N.Y., home. Horgan, a 27-year-old who had Duchenne muscular dystrophy, died last month, Oct. 2022, according to Cure Rare Disease, a Connecticut-based nonprofit founded by his brother, Rich, to try and save him. Although it’s still unclear what killed him, his death is raising questions about the experiment and the overall prospect of what one ethicist calls designer genetic therapies. (Kate Collins/The Journal via AP)